Earworm number 347, courtesy of QUEEN and last night's entertainment on TLC.
The show was called "The Boy Whose Skin Fell Off." I had no idea that I was soon to become a blubbering blob of jello on the couch.
As the show opened, a rather high-pitched voice began introducing the pictures, of a stange-looking boy in a wheelchair. He wore bandages all the way down his arms, covering oddly-shaped stumps at the ends, a constant hat, and a bemused expression on his face. His little voice sounded so sweet. Pre-pubescent even. Then I listened as it was revealed that this sweet little boy was 36 years old, and had been suffering since before birth with a disease I haven't checked the spelling on yet, called EB, which caused his current terminal skin cancer, and he was planning his own funeral.
This show was more than one of those "look at poor me who suffers while you smug innocents look on" types. He narrated his own death. This man suffered, really really suffered, his entire life, from a genetic skin disorder that kept his skin from ' binding' to his body properly. The first tears came while his mum talked about how difficult emotionally it was to try to cuddle him as a newborn, knowing that EVERY TIME she TOUCHED him, his skin would blister horribly, and painfully. Nearly every day, his body was 75% covered in bandages. Horrendous, constant pain. He was born with NO SKIN covering one of his legs from the knee down, presumably from friction in utero.
And Yet, no pity party for Mr Kennedy. All of Alnwick, England, was invited to celebrate life with him. The sense of humor was immense. I laughed mightily as an English Starlet, spokesperson for the UK Charity, DEbRA, started crying whilst talking to him, and after she left to get him his autographed picture, he turned to the camera, grinned mischeviously, made a 'chalk one up for me' sign in the air, and chuckled. He also mentioned, as an aside, that he could see right down her shirt as she had leant down to hug him.
The earworm came, and WILL.NOT. LEAVE. His funeral was completely planned out. He chose his coffin carefully, made sure it was carved with tigers on the side, and an image of a can of Heinz57 beans. Why? So people would look at each other at the funeral and wonder "Why the beans?" He figured they would have something to talk about then.
Near the end, I began sobbing as the camera closed in on his mum, as she was mouthing the words to his chosen funereal soundtrack: Don't Stop Me Now by Queen. His favorite song. She lip-synched along through her tears. And then I could no longer see the screen.
I'm having such a good time. I'm havin' a ball.
Monday, October 24, 2005
Saturday, October 01, 2005
List of banned books - why people, why?
- Scary Stories (Series) by Alvin Schwartz
- Daddy’s Roommate by Michael Willhoite
- I Know Why the Caged Bird Sings by Maya Angelou - read this one
- The Chocolate War by Robert Cormier
- The Adventures of Huckleberry Finn by Mark Twain - own this one
- Of Mice and Men by John Steinbeck - read in high school
- Harry Potter (Series) by J.K. Rowling- own all of them so far, several copies so Bookworm, hubby and I don't fight over them
- Forever by Judy Blume - read it
- Bridge to Terabithia by Katherine Paterson - no, but the bookworm did a project on it last year, fifth grade, an assigned book
- Alice (Series) by Phyllis Reynolds Naylor
- Heather Has Two Mommies by Leslea Newman
- My Brother Sam is Dead by James Lincoln Collier and Christopher Collier
- The Catcher in the Rye by J.D. Salinger- read it
- The Giver by Lois Lowry
- It’s Perfectly Normal by Robie Harris
- Goosebumps (Series) by R.L. Stine
- A Day No Pigs Would Die by Robert Newton Peck
- The Color Purple by Alice Walker- own it, and the movie, but the book is better
- Sex by Madonna- perused it once at B&N
- Earth’s Children (Series) by Jean M. Auel-own Clan of the Cave Bear, read the others
- The Great Gilly Hopkins by Katherine Paterson
- A Wrinkle in Time by Madeleine L’Engle-read it as a kid and re-read it when the bookwork took it out of the library
- Go Ask Alice by Anonymous-read it
- Fallen Angels by Walter Dean Myers
- In the Night Kitchen by Maurice Sendak
- The Stupids (Series) by Harry Allard
- The Witches by Roald Dahl- read it to the bookworm after she saw the movie
- The New Joy of Gay Sex by Charles Silverstein
- Anastasia Krupnik (Series) by Lois Lowry
- The Goats by Brock Cole
- Kaffir Boy by Mark Mathabane
- Blubber by Judy Blume- read it
- Killing Mr. Griffin by Lois Duncan
- Halloween ABC by Eve Merriam
- We All Fall Down by Robert Cormier
- Final Exit by Derek Humphry
- The Handmaid’s Tale by Margaret Atwood-read it
- Julie of the Wolves by Jean Craighead George-bookworm owns the series
- The Bluest Eye by Toni Morrison-read it
- What’s Happening to my Body? Book for Girls: A Growing-Up Guide for Parents & Daughters by Lynda Madaras
- To Kill a Mockingbird by Harper Lee-read it
- Beloved by Toni Morrison-own it
- The Outsiders by S.E. Hinton-read it in grade school
- The Pigman by Paul Zindel-also read in grade school
- Bumps in the Night by Harry Allard
- Deenie by Judy Blume
- Flowers for Algernon by Daniel Keyes-assigned book in high school
- Annie on my Mind by Nancy Garden
- The Boy Who Lost His Face by Louis Sachar
- Cross Your Fingers, Spit in Your Hat by Alvin Schwartz
- A Light in the Attic by Shel Silverstein-own it, and several others as the bookworm loves them
- Brave New World by Aldous Huxley-read it
- Sleeping Beauty Trilogy by A.N. Roquelaure (Anne Rice)
- Asking About Sex and Growing Up by Joanna Cole
- Cujo by Stephen King-own it
- James and the Giant Peach by Roald Dahl-third grade teacher read a chapter a day to us, and we loved it.....I now own it
- The Anarchist Cookbook by William Powell
- Boys and Sex by Wardell Pomeroy
- Ordinary People by Judith Guest-read it
- American Psycho by Bret Easton Ellis
- What’s Happening to my Body? Book for Boys: A Growing-Up Guide for Parents & Sons by Lynda Madaras
- Are You There, God? It’s Me, Margaret by Judy Blume-assigned book in grade school
- Crazy Lady by Jane Conly
- Athletic Shorts by Chris Crutcher
- Fade by Robert Cormier
- Guess What? by Mem Fox
- The House of Spirits by Isabel Allende- read it, and own this and several ofthers, Allende is a fabulous writer
- The Face on the Milk Carton by Caroline Cooney-bookworm read it
- Slaughterhouse-Five by Kurt Vonnegut-read it
- Lord of the Flies by William Golding-read in jr high, was assigned but we all loved it
- Native Son by Richard Wright
- Women on Top: How Real Life Has Changed Women’s Fantasies by Nancy Friday
- Curses, Hexes and Spells by Daniel Cohen
- Jack by A.M. Homes
- Bless Me, Ultima by Rudolfo A. Anaya
- Where Did I Come From? by Peter Mayle
- Carrie by Stephen King-own it
- Tiger Eyes by Judy Blume
- On My Honor by Marion Dane Bauer
- Arizona Kid by Ron Koertge
- Family Secrets by Norma Klein
- Mommy Laid An Egg by Babette Cole
- The Dead Zone by Stephen King-own it, love the movie, love the TV series with Anthony Michael Hall even more
- The Adventures of Tom Sawyer by Mark Twain
- Song of Solomon by Toni Morrison-own it
- Always Running by Luis Rodriguez
- Private Parts by Howard Stern
- Where’s Waldo? by Martin Hanford-huh? banned? COME ON...
- Summer of My German Soldier by Bette Greene
- Little Black Sambo by Helen Bannerman
- Pillars of the Earth by Ken Follett
- Running Loose by Chris Crutcher
- Sex Education by Jenny Davis
- The Drowning of Stephen Jones by Bette Greene
- Girls and Sex by Wardell Pomeroy
- How to Eat Fried Worms by Thomas Rockwell
- View from the Cherry Tree by Willo Davis Roberts
- The Headless Cupid by Zilpha Keatley Snyder
- The Terrorist by Caroline Cooney
- Jump Ship to Freedom by James Lincoln Collier and Christopher Collier
I saw this posted over at Doc Ern's place, and could not believe how many GREAT books have been banned. Some of the other titles are familiar but to be honest, I read so much I am not really sure whether I have read some or not, so I left those blank.
Who decides to ban some of these wonderful books? Have any of these people ever actually read the books they want to ban?
Kid across the street actually told the bookworm that we must not be ' good christians' because we like the Harry Potter series. Oh well, chalk up another parenting failure for that one. Please, people.
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